Quotes: MENA   Enter Symbol: NewsLetter: Search: advanced

Dubai does well to curb thalassaemia in newborns  Join our daily free Newsletter

MENAFN - Khaleej Times - 02/09/2014
No. of Ratings : 0
Add to Mixx!



(MENAFN - Khaleej Times) Drop in the number of disease cases attributed to awareness campaigns screenings.The number of cases of thalassaemia in newborns in Dubai has drastically reduced due to the rise in awareness levels and compulsory premarital screenings for couples. Dr Khawla Belhoul with patients at the Thalassaemia Centre.

“For the past three to four years the number of new cases of inherited blood disorder thalassaemia has reduced to zero to one case per year as opposed to 14 to 18 cases per year. This means the centre receives either no case or one new case per year” said Dr Khawla Belhoul Director of the Dubai Health Authority’s Thalassaemia Centre.

She attributed the drastic reduction in numbers to the extensive medical and educational awareness campaigns.

Dr Khawla also added the premarital screening has a strong impact reducing the incidence of the disease but the impact was not immediate. A premarital screening law for genetic diseases was introduced in 2006.

One in 12 people in the UAE carry the thalassaemia gene. Thalassemia is a recessive genetic disease meaning both parents must carry the gene to pass it along. When that is the case with each pregnancy there is a 25 per cent chance that a child will be born with the disease a 50 per cent chance the child will only be a carrier and a 25 per cent chance the child will not be affected.

Costs of treatment remain a burden on the patients and UAE healthcare system though government centres – which are already running in full capacity — offer the treatment free of cost that can vary depending on the age and complications with adult patients.

The only cure is bone marrow transplantation from a fully matched compatible donor which can cost more than Dh300000.

“Since 2007 we began exhaustive community outreach and awareness activities which has directly resulted in reducing the number of thalassaemia cases in the emirate.”

The Emirates Thalassemia Society said that when most to-be-married couples objected and said it was too late to call of the weddings the focus was shifted to educating students.

“We used to have issues when couples would be tested to see if they were a thalassemia carrier just a few days before the wedding” said Shakeela Basheer administration officer at the society. “And if they tested positive it would create complications for them so we shifted our focus to educating students and this has definitely helped” added Shakeela who is also a patient.

Shakeela was last year awarded by the Shaikh Sultan bin Khalifa International Thalassemia Award for being the most ideal patient and inspiring others.

Last year 54 schools two universities and 11 government departments visited the thalassemia centre as part of the awareness campaigns. “Each year students from class 9 to 12 visit the centre and are educated about the disease. Reaching out to them to understand the disease and its life-time complications has greatly helped curb the rise in number of new cases” explained Dr Khawla.

She said students opt to get themselves tested to understand whether they are a carrier or not and this is important to do early on in life so that they can take future decisions carefully.

“Our message is clear — it is inadvisable for both partners with thalassaemia to get married because there are strong chances that all babies born to that couple will carry the disease and we see several such cases. However if only one person has thalassaemia it is still okay because the baby will be a carrier but will not have thalassaemia.”

The centre has 1660 out-patients who do not require blood transfusions and 438 in-patients who require blood transfusions every two to three weeks. In 2013 8114 patient visits were recorded by the centre.

Seventy per cent of the patients at the centre are adults and 30 per cent are children.

asmaalizainkhaleejtimes.com

 


Khaleej Times




  MENA News Headlines
 Jul 4 2015 - Russian cargo ship heads to ISSThe Peninsula
(MENAFN - The Peninsula) A Russian Soyuz rocket blasted off yesterday to deliver a cargo ship loaded with food, water and equipment to the International Space Station, breaking a string of launch ...

 Jul 4 2015 - Doha Bank raises QR2bn Tier 1 capital-boosting bondThe Peninsula
(MENAFN - The Peninsula) In March, the bank said that it would issue capital-enhancing bonds with a perpetual tenor and an option for the bank to redeem them after six years, to boost the bank's Tier ...

 Jul 4 2015 - Qatar stock index edges lower this weekThe Peninsula
(MENAFN - The Peninsula) Qatar Stock Exchange (QSE) index edged lower this week when the bourse closed Thursday at 12,121.08 points, down 12.15 points, or 0.10 percent.The traded value of QR 1.32bn ...

 Jul 4 2015 - Mideast passenger demand growth soars 14pc: IATAThe Peninsula
(MENAFN - The Peninsula) The International Air Transport Association (IATA) announced global passenger traffic results for May showing strong demand growth compared to May 2014 for both domestic and ...

 Jul 4 2015 - Qatar- Milaha acquires 100pc controls in two liquefied gas carriersThe Peninsula
(MENAFN - The Peninsula) Milaha announced that its wholly owned subsidiary, Qatar Shipping Company, acquired the remaining 60 percent interest in each of the two entities that own the liquefied ...

 Jul 4 2015 - Tunisia arrests eight with 'direct links' to beach massacreThe Peninsula
(MENAFN - The Peninsula) Tunisia has arrested eight people in connection with last week's jihadist massacre at a seaside resort, as the remains of more British victims were set to be flown home ...

 Jul 4 2015 - Egyptian air strikes kill 23 militants in North Sinai: sourcesThe Peninsula
(MENAFN - The Peninsula) Egypt launched air strikes on Islamist militant targets in the Sinai peninsula on Thursday, killing 23 fighters a day after the deadliest clashes in the region in years, ...

 Jul 4 2015 - Saudi opens privatised airport for pilgrimsThe Peninsula
(MENAFN - The Peninsula) Saudi Arabia yesterday officially opened a billion-dollar aviation gateway aimed at pilgrims, in its first airport privatisation. Local media said Custodian of the Two Holy ...

 Jul 4 2015 - Kuwaiti Sunni and Shi'ite worshippers, pray together with Emir showing unityThe Peninsula
(MENAFN - The Peninsula) Kuwait deployed unprecedented security measures around Shiite mosques for Friday prayers following last week's deadly bombing, as the emir attended a rare Shiite-Sunni joint ...

 Jul 4 2015 - Top jihadist from Tunisia killed by US strike in LibyaThe Peninsula
(MENAFN - The Peninsula) A top Tunisian jihadist was killed by a US airstrike in Libya last month, The New York Times reported Friday.The jihadist, Seifallah Ben Hassine, also known as Abu Ayadh, was ...

more...


 






Google

 
 

Middle East North Africa - Financial Network

MENAFN News Market Data Countries Tools Section  
 

Middle East North Africa - Financial Network
Arabic MENAFN

Main News
News By Industry
News By Country

Islamic Finance News
Private Equity News

How-To Guides
Technology Section

Travel Section

Search News

Market Indices
Quotes & Charts

Global Indices
Arab Indices

Commodoties

Oil & Energy

Currencies Cross Rates
Currencies Updates
Currency Converter

USA Stocks
Arab Stocks
 

Algeria 
Bahrain 
Egypt 
Iraq
Jordan 
Kuwait 
Lebanon
Morocco 
Oman 
Palestine
Qatar 
Saudi Arabia 
Syria
Tunisia 
UAE 
Yemen

Weather
Economic Calendar
Financial Glossary


Financial Calculators

RSS Feeds [XML]

Corporate Monitor

Events

Real Estate
Submit Your Property

Arab Research
Buy a Research

Press Releases
Submit your PR

Join Newsletters


 
© 2014 menafn.com All Rights Reserved.  Terms of Service | Privacy Policy | Contact Us | Advertise | About MENAFN | Career Opportunities | Feedback | Help