Quotes: MENA   Enter Symbol: NewsLetter: Search: advanced

Dubai does well to curb thalassaemia in newborns  Join our daily free Newsletter

MENAFN - Khaleej Times - 02/09/2014
No. of Ratings : 0
Add to Mixx!



(MENAFN - Khaleej Times) Drop in the number of disease cases attributed to awareness campaigns screenings.The number of cases of thalassaemia in newborns in Dubai has drastically reduced due to the rise in awareness levels and compulsory premarital screenings for couples. Dr Khawla Belhoul with patients at the Thalassaemia Centre.

“For the past three to four years the number of new cases of inherited blood disorder thalassaemia has reduced to zero to one case per year as opposed to 14 to 18 cases per year. This means the centre receives either no case or one new case per year” said Dr Khawla Belhoul Director of the Dubai Health Authority’s Thalassaemia Centre.

She attributed the drastic reduction in numbers to the extensive medical and educational awareness campaigns.

Dr Khawla also added the premarital screening has a strong impact reducing the incidence of the disease but the impact was not immediate. A premarital screening law for genetic diseases was introduced in 2006.

One in 12 people in the UAE carry the thalassaemia gene. Thalassemia is a recessive genetic disease meaning both parents must carry the gene to pass it along. When that is the case with each pregnancy there is a 25 per cent chance that a child will be born with the disease a 50 per cent chance the child will only be a carrier and a 25 per cent chance the child will not be affected.

Costs of treatment remain a burden on the patients and UAE healthcare system though government centres – which are already running in full capacity — offer the treatment free of cost that can vary depending on the age and complications with adult patients.

The only cure is bone marrow transplantation from a fully matched compatible donor which can cost more than Dh300000.

“Since 2007 we began exhaustive community outreach and awareness activities which has directly resulted in reducing the number of thalassaemia cases in the emirate.”

The Emirates Thalassemia Society said that when most to-be-married couples objected and said it was too late to call of the weddings the focus was shifted to educating students.

“We used to have issues when couples would be tested to see if they were a thalassemia carrier just a few days before the wedding” said Shakeela Basheer administration officer at the society. “And if they tested positive it would create complications for them so we shifted our focus to educating students and this has definitely helped” added Shakeela who is also a patient.

Shakeela was last year awarded by the Shaikh Sultan bin Khalifa International Thalassemia Award for being the most ideal patient and inspiring others.

Last year 54 schools two universities and 11 government departments visited the thalassemia centre as part of the awareness campaigns. “Each year students from class 9 to 12 visit the centre and are educated about the disease. Reaching out to them to understand the disease and its life-time complications has greatly helped curb the rise in number of new cases” explained Dr Khawla.

She said students opt to get themselves tested to understand whether they are a carrier or not and this is important to do early on in life so that they can take future decisions carefully.

“Our message is clear — it is inadvisable for both partners with thalassaemia to get married because there are strong chances that all babies born to that couple will carry the disease and we see several such cases. However if only one person has thalassaemia it is still okay because the baby will be a carrier but will not have thalassaemia.”

The centre has 1660 out-patients who do not require blood transfusions and 438 in-patients who require blood transfusions every two to three weeks. In 2013 8114 patient visits were recorded by the centre.

Seventy per cent of the patients at the centre are adults and 30 per cent are children.

asmaalizainkhaleejtimes.com

 


Khaleej Times




  MENA News Headlines
 May 25 2015 - Syria: Opposition forces kill 15 Assad regime soldiersThe Journal Of Turkish Weekly
(MENAFN - The Journal Of Turkish Weekly) Syrian opposition forces have killed 15 regime troops in operations in Aleppo, in northern Syria, the opposition said.The spokesman of what is referred to as ...

 May 25 2015 - Jordan calls for 'serious' Palestinian-Israeli talksThe Journal Of Turkish Weekly
(MENAFN - The Journal Of Turkish Weekly) Jordan called on Sunday for launching "serious" and "effective" negotiations between the Palestinians and the Israelis.Foreign Minister Nasser Judeh said the ...

 May 25 2015 - Libya pro-Brotherhood figures to attend Cairo meetingThe Journal Of Turkish Weekly
(MENAFN - The Journal Of Turkish Weekly) Some pro-Muslim Brotherhood figures from Libya will attend a Libyan tribal leaders' meeting scheduled to start in Cairo on Monday, an Egyptian newspaper ...

 May 25 2015 - Kuwaiti Singer Al-Rowaished HonoredArab Times
(MENAFN - Arab Times) Minister of Information and Minister of State for Youth Affairs Sheikh Salman Sabah Al-Salem Al-Humoud Al-Sabah honored Sunday singer Abdullah Al- Rowaished for acquiring an ...

 May 25 2015 - General Assembly Members Of Qadisiya Club Honors Team For Winning Amir CupArab Times
(MENAFN - Arab Times) General Assembly members of Qadisiya Club Saoud Abdul Aziz Al-Babtain and Mohammad Abdul Aziz Al-Babtain organized a ceremony in honor of the number one football team in ...

 May 25 2015 - ALARGAN Posts KD 4.7mn Net Profit In 2014Arab Times
(MENAFN - Arab Times) ALARGAN International Real Estate Company held its ordinary General Assembly meeting on May 24, 2015, with an attendance level that reached 94.51 %. During the meeting, the ...

 May 25 2015 - KSE Kicks Off Week With 21.18 Pts DropArab Times
(MENAFN - Arab Times) Kuwait stocks pulled lower on Sunday after ending the previous week on dull note. The main index dropped 21.18 pts in lackluster trade to close at 631.09 pts as sentiment ...

 May 25 2015 - Kuwait Govt Woos Investors With Lucrative Business EnvironmentArab Times
(MENAFN - Arab Times) Kuwait has a lucrative business environment for foreign investors to ultimately see economic and human development, thus honoring His Highness the Amir Sheikh Sabah Al-Ahmad ...

 May 25 2015 - Jordan- Govts Need To Invest More In Infrastructure: AlghanimArab Times
(MENAFN - Arab Times) Bring more Arab women into the workforce, invest in "bite-sized" infrastructure projects and get the private sector more involved in training young job seekers - these are the ...

 May 25 2015 - Shabaab Fighting In Somalia Kills 24 PeopleArab Times
(MENAFN - Arab Times) Fighting in south Somalia between al Shabaab militants and government forces killed at least 24 people, while a rebel attack in the capital killed three Transport Ministry ...

more...


 






Google

Arab Advisors_12th convergence conf

 
 

Middle East North Africa - Financial Network

MENAFN News Market Data Countries Tools Section  
 

Middle East North Africa - Financial Network
Arabic MENAFN

Main News
News By Industry
News By Country

Islamic Finance News
Private Equity News

How-To Guides
Technology Section

Travel Section

Search News

Market Indices
Quotes & Charts

Global Indices
Arab Indices

Commodoties

Oil & Energy

Currencies Cross Rates
Currencies Updates
Currency Converter

USA Stocks
Arab Stocks
 

Algeria 
Bahrain 
Egypt 
Iraq
Jordan 
Kuwait 
Lebanon
Morocco 
Oman 
Palestine
Qatar 
Saudi Arabia 
Syria
Tunisia 
UAE 
Yemen

Weather
Economic Calendar
Financial Glossary


Financial Calculators

RSS Feeds [XML]

Corporate Monitor

Events

Real Estate
Submit Your Property

Arab Research
Buy a Research

Press Releases
Submit your PR

Join Newsletters


 
© 2014 menafn.com All Rights Reserved.  Terms of Service | Privacy Policy | Contact Us | Advertise | About MENAFN | Career Opportunities | Feedback | Help